We are finally getting there with meals. They are getting a little easier to get into Abigail. Melinda has perfected the Shiritaki noodle dish to the point where Abigail will chant..."Pasta, Pasta, Pasta" (Every time she does it I hear Al Pacino's voice yelling Attica...Attica...Attica!). We have had two days now where it hasn't been a major issue to make sure she gets her daily calories. We are cutting the Calories back again to about 1300 a day with a minor drop in protein. We were worried we were not going to be able to drop the protein with the calories as it would have been almost impossible to keep the 4:1 ratio with the higher protein and the less calories. For the first time in three weeks Abigail has asked for more dinner which is actually a good sign.
Abigail had a great day, she went to the children's museum and painted her face(I have a picture I need to download of that)She interacted with the other kids at an appropriate age level and just had an over great time playing with all the toys.
Overall she is doing well, we are not seeing any seizures, just some periodic weird breathing that we are going to research and maybe ask the doctor about, but nothing that looks even remotely what her seizures used to look like. We have an appointment on the 11th of February with her local Neurologist and we may discuss cutting back her vigabatrin if everything continues to look good!
Sleep still sucks, but either we are getting used to it, or it might be getting better for her really really slowly. I have doubled my caffeine intake since the 1st of the year...not your normal New Years resolution. Thank goodness I am already in shape or I am sure I would be in trouble.
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