Reset Button

In my line of work as an IT consultant nothing strikes fear into me quite like someone saying "I hit the reset button....just like you told me not to". These usually end up taking 8 to 9 hours on the phone getting it all working again.

I hit the internal reset button last night and got 8 hours of good sleep. Red lined frustration levels are now in the clear, all pressure relief valves are with in normal parameters.

Abigail was so happy to see her nanny, Katy, for the first time in two weeks this morning. She ran to Katy and gave her a gigantic hug and kiss and then proceeded to try and convince Katy it was time to go somewhere...anywhere...just get her away from these crazy people who claim to be her parents. Katy and Abigail go on adventures everyday! Parks, OMSI, Zoo, Target, the Bank, anywhere but here is always exciting to Abigail! I have a feeling Abigail was just getting fed up with being cooped up with the same people everyday, all day.

Melinda and I are going to try and get Abigail's daily routine as back to normal as we can. We both feel this will help her have a sense of normalcy. I am going to take her to preschool for a little bit this afternoon, after she wakes up, and see how she does. I am planning to take her out before snack time at 2:30 and will continue to do so until she is fully adjusted to the diet. She has a special preschool thru the county on Monday, Tuesday, and Wednesday mornings it is thru the the Portland Public Schools and provides speech therapy as well as cognitive and physical therapy to help with the learning and speech delays she has as a direct result of the epilepsy. Her teachers are terrific in both schools and Abigail's enjoys going immensely. We are not sure how we are going to handle snacks at the morning preschool yet, Abigail's diet regimen does not account for, or allow for snacks. I am going to call and discuss options this afternoon with the director.

Abigail's had a great morning with Katy, they went to the park and enjoyed the first sunny day in weeks here in Portland.

We are still seeing seizures, only one or two per day. The ones we are seeing however are barely perceptible with little to no head nodding. Abigail remains cognitively present and they pass quickly. The results have been so quick and positive that it makes everything else that is going on worth it! I hope it continues so we can try and cut back on the Vigabatrin in the next 4 weeks or so!

I want to say thanks to everyone for the good thoughts and support over the last week as we get the diet started, it mean a lot to Melinda and I!!!