It was the saddest sound I had ever heard. Melinda was feeding Abigail her new favorite dish, (the shiritaki noodles with cream sauce) when it was all done Abigail picked up the bowl then turned to look at Melinda and I, and started to cry...."More" she cried. "MORE PASTA!!!" she insisted. Tears were shed, screams were wrought. It got even better when we tried to make her drink her cream.
We have lowered her calories to 1300 per day and it seems to be finally helping. She is hungry come meal time and seems to get enough to eat after the meals. She more often than not will ask for more but can be distracted to think about something else. That being said she really really likes the pasta dish Melinda has worked up.
I think Abigail has had it with the whipping cream, not that I blame her, we regularly have to administer it now with an oral syringe.
Abigail had a great day, lots of play time, and she had fun at both her morning and afternoon preschools. I managed to slip out for some coffee this afternoon, during class, and she never even noticed I was gone. Her afternoon teachers have said that we might try extended time periods with me out of the room to see how she does. In the two hours we were at class today she never came looking for me once, well there was the brief visit she gave me at the arts and crafts table where she destroyed the Popsicle stick creation I had spent 30 minutes gluing together, piece by painstaking piece...I had forgotten how long Elmer's Glue takes to dry.
We are going back and forth with her neurologist team in California and her pediatrician here in Portland about the breathing change Abigail has started doing. They are short rapid breaths...almost pants and she does it quite often. Her pediatrician says it due to being in Ketosis and that if she stays alert and active that she should be fine. We are hoping to hear how the converstation between her Pediatrician and the Neurologist goes to see if they want any addtional tests. We test her urine at least once a day and the dip stick only gives us so much information.
Abigail is so much more aware of everything during the day it is amazing to watch her watch me, Melinda, Shelby, her friends, and Teachers. She is learning at such a rapid rate and picking up new words every day. We used to only see one or two multiple word sets per day. Now she is regularly making sentences and asking for things she wants.
1 comment:
Well, the developmental stuff is so wonderful to hear!
Are you using Ketostix or Multistix? We just use the Ketostix ourselves, but I know some families who use the others, at least once in a while, to get a little more information. (They're the ones that Melinda probably saw at the doctor's office when she was pregnant.) They are more expensive, so the families I know cut them in half to make them last longer. Come to think of it, why don't we do that with the ketostix?!
We've had our ups and downs with cream, too. Jade is back to drinking it again, having tired of ice cream.
I don't know how much cream goes with the pasta dish, but would it be possible to add it to the sauce to make a sort of rose sauce? (Assuming you have tomato sauce in there.) Even adding part of the cream would mean less would have to be drunk. As for wanting more, Melinda might be able to up the amount of pasta if she cut down on any veggies that are in there.
I just downloaded a file from the Yahoo group that has ideas for creamless recipes. I'll e-mail it to you.
Fawn
fawnahareo.com
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